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Falling Down Sick or The End. Maybe. Finally? Maybe.

My mom fell. Hard. On her face. She was trying to get out of bed. She seemed OK. Shaken, but OK. I walked in the door as they were calling me to tell me about the fall. I stayed for … Continue reading →

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A Letter to Those Businesses And Professionals Who Make Dementia Even More...

Dear hospice and nursing home (names of providers removed because I have enough problems, frankly), Thank you for making late/end stage dementia even more awful by not coordinating your care of my mom,...

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The Good News: You’re Going to Die. The Bad News: Death Has Bad Breath & If...

If you’re reading this blog because you have a parent dying from Frontotemporal dementia, I have bad news: things are going to get worse. That is a fact. No point in sugar coating the truth, right?...

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A Memoir: Until I Say Goodbye by Susan Spencer-Wendel

I stumbled upon Susan Spencer-Wendel’s soon-to-be released book, Until I Say Good-Bye: My Year of Living with Joy early this morning. I haven’t read it yet. It doesn’t come out until next March. Still,...

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Life After My Demented Mom or A New Year: Time To Think On Death

It’s another year. And I am trying to be optimistic about 2013 — optimism is not my strong suit — mostly because, at this point (knock on wood…… the gods can be very cruel), the worst thing that could...

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Reverse Empty Nest Syndrome

When I walked into the front door of my mother’s home, a little over two weeks had past since my last visit. Because of the influenza epidemic that turned Arizona bright red on the “flu view” map of...

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Going to the Funeral is the Easy Part

The other day, my friend Gary posted an NPR “All Things Considered“ interview with a woman named Deirdre Sullivan to his Facebook wall. The gist of the interview was the importance of going to the...

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Hey God, She’s Dying. Where Are You?

I’m still coming to terms with the idea that my mom is dying. It hardly seems possible. I mean, I knew, eventually, she would die. But death felt faraway. It still feels far away. If she is dying,...

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A New Chapter… Life After Death & Dementia

I don’t really know what to say at this point. The thing is, I still have a lot to say. I want to tell our story. I have to. I need to keep going because, well, what else am I going to do? Sit back...

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The Recovering Caregiver: A Podcast About Life After Dementia

“The Recovering Caregiver” is a four-episode podcast series about life after dementia. This podcast is geared toward caregivers who have entered the final phase of caregiving: life without their loved...

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